2026 Patient Experience Award recipients
Alberta Children’s Hospital Family Mentor Program
At the Alberta Children’s Hospital in Calgary, families whose children faced repeated hospitalizations shared they often felt alone and overwhelmed. A volunteer peer support model was well received by families but difficult to sustain. The Family Mentor Program changed to a formal, paid mentor model to provide consistent, integrated, peer support to every inpatient family. Hear one mom’s story of how a family mentor with lived experience helped her navigate a difficult time. [Discusses complex medical needs and emergency care.]
Goba Care
For many residents of northern Alberta, Northwest Territories, and Nunavut, travelling to Edmonton for care is a major undertaking. The experience for Indigenous patients in particular can be marked by financial stress, language and cultural barriers, and isolation. Patients are often required to travel alone, facing complex diagnoses without an advocate and navigating airports and huge urban hospitals while medically fragile. A mom describes how Goba Care kept her family feeling connected to culture and community while managing complex medical care for her baby and a long-term move to Edmonton.
Pediatric Interdisciplinary Neurodevelopmental Clinic (PINC)
Evolving scientific knowledge has shown many factors beyond prenatal alcohol consumption are relevant in assessing and diagnosing neurodevelopmental conditions such as fetal alcohol spectrum disorder. These include genetics, trauma, prematurity, co-existing health conditions, exposure to other drugs, and even social factors like poverty and racism. The clinic (PINC) widened its focus on understanding each child’s health and disability within their unique story and family history. Two moms describe how the clinic’s assessments were individualized, flexible, and focused on helping their children do what matters most to them in their daily lives.
Provincial Pathways
After receiving a diagnosis, patients across Alberta repeatedly shared they lacked clear, consistent information about what to expect on their care journey. The Provincial Pathways Unit worked with patient advisors from across Alberta to create a template for describing a patient’s journey, which was then used to create 20 diagnosis-specific pathways. Patient advisors shaped the language and design of them – and of the parallel clinical pathways for providers. Now, patients and providers can rely on guidance that matches. Hear a patient describe how this makes it easier for patients to take an active role in their health journey.